To submit your Survivor Story, or update your existing story, please email muriel@finkelsupply.com

There are many long term survivors of Amyloidosis - here are some of their stories:

Name	Type of Amyloidosis	Date of Diagnosis	Treatment
Dan Baker	AL	2004	Chemo, SCT, Dex, Thalidomide Complete Remission.
Tim Bass	AL	2002	HCD/SCT 2003 HCD/SCT 2007
Javier Beltran	ATTR	2007	DOMINO LIVER TRANSPLANT 11/2008
Barry E. Breen	ATTR	2009	TRANSPLANT 3/2010
Lorraine Brown	AL	March 2008	Valcade
Louis Catania	AL with MM	May 1994	Chemo then SCT
Ellen Cameron	Familial	June 2004	Triple Transplant!
Irwin Cohen	AL	2000	Chemo/Kidney Transplant 4/20/2007
Lynette Dager	AL	Aug 2004	Transplant, SCT & Chemo
Brenda Gregory	AL with MM	December 1997	Transplant, SCT & Chemo
Amy Haas	AA -TRAPS	Spring – 2007	Dex/ Remission
Jay Helwig	AL – Cardiac	May 1994	Mel/Pred June 1994 -- SCT Aug 1994- BUMC
Alfred "Bart" Howe	AL with MM	MM-Dec 2001 AL -Dec 2003	Chemo with Revlimid
Fred Jackson	AL with MM	Feb 2005	SCT
“Ray” Howard Jones	AL	2005	Velcade/Dex Remisson 2008
Steve Keller	AL	2004	SCT & Chemo
Penny Kubik	AL	2003	SCT
E.L.K. Hagerstown, Md	ATTR	6/26/2002	not yet active (AMY is dormant)
John Lee	Familial ATTR	Feb 2005	Split Liver Domino Transplant
Vince Liguore	AL	2009	SCT – Chemo – Heart TX
Anne Madsen	Familial ATTR		Liver Transplant
Walt McGuire	AL	June 2006	Rev/Dex –SCT- Organ TX’s
MDL	AL with MM	Dec 2002	Dex prior to SCT
Claire Montour	Familial apoA1	1999	Triple Organ Transplant Heart, Liver, Kidney – May 20, 2008-Mayo/MN
Jack Moore	AL	June 2005	SCT
Joni Pearl	AA
John Personette	AL and LYMPHOMA	2007	Chemo- Vinchristine, Rituxin, Prednisone 10/08-3/09
Kay Rowley	AL	FEB 2002	Chemo/Complete Remission
Sandi Sadler	Familial ATTR	Oct 2003	Liver Transplant
Dan Sansbury	AL	March 2010	Rev/Dex – 5 cycles, Velcade-2 cycles- ASCT – 10/2010
Sonya Scarff	AL	Apr 2004	Chemo
Kathy Spaulding	AL	July 2007	Melphalan and SCT
Sam T. (PA, USA)	AL-Pulmonary	2/6/03	Chemo
David Uman	AL	Dec 2004	SCT & Chemo
IRVIN VANDER LEEST	AL	November 2006	Chemo
John K. Webster	AL-Cardiac, MM	2009	Chemo Only-Vel/Dex/Mel
Kathy Wilson	AL and MM	2003	Chemo

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Amyloidosis Support Groups
AmyloidosisSupport.com
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