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Pacific Northwest - Portland

If you would like to talk, please call the ASG at 866-404-7539 toll free in the USA (leave a message if no one is there and you will be called back). The non toll free number is 630-350-7539.

AMYLOIDOSIS SUPPORT GROUP MEETING
Contact Person:

Contact:
Muriel muriel@finkelsupply.com
Kay Rowley – kcamelot1@yahoo.com
866-404-7539 (Toll-Free)

Date: July 19, 2008
Time: 9:00 am to 3 pm (flexible)
Location: Providence St. Vincent’s Medical Center
Note ROOM 12 for this meeting. Enter the middle entrance take the green elevators down to LL. Turn RIGHT to exit elevator cubicle and then go through the first door on the right...has a glass -panel and says staff only... you can see the entrance of 12 across the hall....
Comments: Guest: Dr. Farnoush Abar – OHSU and LLS and another Guest TBA
Notes on previous meetings: Craig Nichols MD was wonderful and we look forward to seeing him again……Dr. Abar dropped by as did the LLS. Craig Nichols MD.
Dr. Nichols' CV (Word Doc)
A 2004 Interview: http://www.acor.org/TCRC/iu.html


The Portland Meeting was great thanks to the attendees, Kay Rowley, our co-facilitator, The Leukemia and Lymphoma Society, Celgene (they donated our food:=) and the wonderful Dr. Francis Buadi of Mayo/Rochester. http://www.mayoclinic.org/hematology-rst/13986171.html

AND

Our LLS rep, also attended briefly to remind us of their benefits. We had a mix of familial, AL and localized and Dr. Buadi fielded all questions and fit in to the group like a glove (not surgical:=)


Previous Guest – Guest-Dr. Craig Reeder – Mayo/Phoenix http://www.mayoclinic.org/hematology-oncology-sct/10010343.html. Dr. Reeder’s presentation was new and cutting edge and is presence so far away from home was welcome. ………we all appreciated your coming for us…… ……Canada, Washington, Oregon, Arizona, and Illinois were represented……


Previous Guests – The Binding Site was educational and so very helpful as they always are.



Amyloidosis Support Groups
AmyloidosisSupport.com
1-866-404-7539 TOLL FREE USA