"Some day this disease will be considered a treatable nuisance"
-- Dr. Vescio from Cedars Sinai

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Support Group Tips

OHIO/PA - COLUMBUS-OSU

If you would like to talk, please call the ASG at 866-404-7539 toll free in the USA (leave a message if no one is there and you will be called back). The non toll free number is 630-350-7539.

AMYLOIDOSIS SUPPORT GROUP MEETING
Contact Person: Sue Smith turnips@cinci.rr.com
937-393-1135
Muriel muriel@finkelsupply.com
Tel: 847-350-7540
866-404-7539 (Toll-Free)
Date: August 28, 2010
Time: 9am - 3pm - Complimentary Breakfast and Lunch Served
Location: Ohio STATE UNIV..COLUMBUS OHIO The meeting will be in The James Cancer Ctr. on the 5th floor room 518. I know many people use valet parking and if that is the case - go into the front doors and take the elevator to 5th floor. If you park in the parking garage behind The James - park on the 3rd level
Comments: Guests: Yvonne Efebera MD – Hematologist/Oncologist and from the amyloidosis Team-Nephrologist, Cardiologist – Get your questions answered.....
Notes on previous meetings: Our Guest October 3, 2009 – DR. DON BENSON and a wonderful experience with guided imagery with Psychologist Pat Van Kley and our LLS Rep Mike Uscio


Our Guests in March – DR. DON BENSON AND Dr. Sharla Wells-DiGregorio from the Pain and Palliative Care Service at the James, and our LLS r, Mike Uscio (Central Ohio)

I am very excited to announce that our OHIO meeting was a great success. We had people from WV, PA and Northern & Southern Ohio. One of our guests will have a SCT March 26 and 1 other, who at 26 yrs old, was 6 months out from a SCT. Another had a kidney transplant and many others SCT's. We had first timers and others who were regulars.

Our guest Sharla Wells-DiGregorio, PhD - Pain and Palliative Care Dept of OSUMC was very easy to talk with and a very interesting speaker. She met with the caregivers while Dr. Don Benson met with the patients.

Dr. Benson gave an update on clinical trials at OSU. He is such a personable man & stayed with us till the very end of the meeting. As a matter of fact, 15 or so stayed after we'd adjourned to chat and Dr. Benson stayed also. We couldn't ask for more.


Our Guest Speakers were be The Binding Site (Free Light Chains): Richard M. O'Hara, Jr., Ph.D., Technical Director The Binding Site, Inc.,and . Dr. Don Benson –over 35 happy attendees…


Our first meeting (March 1, 2008) had close to 30 attendees and our guests, Dr. Jeffrey Zonder, Dr. Don Benson, Leukemia and Lymphoma Society Rep Mike Uscio and Muriel and Steve Finkel



Amyloidosis Support Groups
AmyloidosisSupport.com
1-866-404-7539 TOLL FREE USA