Our guest June 12, 2010 was DR. DAVID SELDIN – BUMC – AMYLOID PROGRAM
Our guest on August 29 was - Dr. Suzanne Hayman from Mayo Rochester. Dr. Hayman has proven to be one of our more popular guest doctors no matter where the meeting. Her refreshing style of honesty and humor along with her natural “people person” personality enhances her superior knowledge of amyloidosis and makes it fun for all to learn and receive and give support.
Our guest in May was - Dr. Jeffrey Zonder – Karmanos/Detroit
And he shared his wisdom and warmth with us all....as did Dr. Chen from the Cardiology Dept.
Our Guest on 9/27/08 was Dr. Martha Skinner - BUMC. Great Meeting.... 48 in attendance. (Nice to share the event with our Canadian neighbors too...6 in all came to participate.
Dr. Skinner was amazing, she knew so many attendees and if she didn't know you, she knew you by the end of the meeting.
We had a mix of Primary, Familial, AA and Senile (we prefer to call it mature :)
Dr. Skinner heard everyone’s concerns and proceeded to
diagram different aspects of amyloidosis and address everyone’s concerns There was a lot of ground to cover and the morning flew by.
Our lunch break was delicious and we also celebrated Anne & John's 50th Wedding anniversary! We had several anniversaries at this meeting.
I want to thank all those who were able to attend and those who helped spread the word and bring others to the meeting. Our Breakaway sessions are the part of the meeting where we find the most common ground amongst each other. No matter what phase you are dealing with we try our best to identify with and encourage one another.
Remember when we first got our diagnosis.... how alone and knocked down we felt? I believe there is strength in numbers....we share our knowledge & experiences, we start to see some light, learn the lingo, understand the disease process, learn how to address our doctors, discover the centers of excellence, we become empowered through the support of one another...
MaryAnn
Our guest - Dr. Jeffrey Zonder/ from Karmanos was great and helped to make our July meeting a success.
GUEST for April, 2008 was Dr. Sukru Emre, MD FACS
Professor of Surgery and Pediatrics
Chief, Section of Transplantation and Immunology
Director, Yale-New Haven Transplantation Center
Department of Surgery
Yale School of Medicine
Dr.Karen VanHoeven From The Binding Site was so informative and helpful
Dr. Merrill D. Benson – Indiana University was a wonderful guest and informative, fun and casual. Some of his credentials are listed below…….
The Amyloid Research Group at the Indiana University School of Medicine: http://www.iupui.edu/~amyloid/team.htm
First recipient of the international Pasteur-Weizmann/Servier Prize: http://www.servier.com/pro/html_news_home/pasteur_remise1.asp
