If you would like to talk, please call
the ASG at 866-404-7539 toll free in
the USA (leave a message if no one is
there and you will be called back).
The non toll free number is 630-350-7539.
| AMYLOIDOSIS SUPPORT GROUP MEETING |
| Contact Person:
|
Muriel
muriel@finkelsupply.com
or agrossberg@aol.com
|
| Date:
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Saturday June 28, 2008 -Meeting
|
| Time:
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9am to 2:30pm (flexible - closing time light breakfast and lunch served)
|
| Location:
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4th Floor, Room 482,
Mount Sinai Hospital
1425 Madison Ave (NE corner of Madison and 98th)
Manhattan, NYC
|
| Comments:
|
Our guest will be Dr. Angela Dispenzieri from Mayo/Rochester.
http://mayoresearch.mayo.edu/mayo/research/staff/dispenzieri_a.cfm
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| Notes on previous meetings:
|
Our Guest was Dr. Raymond Comenzo of MSKCC. A big thank you to Dr. Comenzo for his appearance as guest speaker at our meeting, answering questions and sharing his hopes and thoughts. How lucky we are in this unlucky world of rare disease to have doctors like Dr. Comenzo working tirelessly for treatment and cure. We look forward to the next visit in February 2009. Watch the website for details.
Our Guest – Dr. John Berk from Boston University Medical Center was brilliant, down to earth and so caring and kind….we hope he returns to the Big Apple Soon…
http://www.bu.edu/amyloid/doctors/index.html
http://www.bu.edu/amyloid/doctors/trials/index.html
Dr. Angela Dispenzieri – Mayo/Rochester was wonderful and we had Dr. Jonathan Bromberg the Transplant Coordinator of Mt.Sinai drop by along with Dr. Del Rio.
We thank Dr. Comenzo so much for your kindness, generosity and time that he so willingly gave to us at our New York Support Meeting Today…….We learned a lot and gained much support from his wonderful spirit. We had 49 people (cousin Kenny counted:=) and all were so grateful.
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