"Some day this disease will be considered a treatable nuisance"
-- Dr. Vescio from Cedars Sinai

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Support Group Tips

Kansas City

This Support Group is still in formation stage. Details to follow as soon as possible.

If you would like to talk, please call the ASG at 866-404-7539 toll free in the USA (leave a message if no one is there and you will be called back). The non toll free number is 630-350-7539.

AMYLOIDOSIS SUPPORT GROUP MEETING
Contact Person: Muriel muriel@finkelsupply.com
Tel: 847-350-7540
866-404-7539 (Toll-Free)

If you are from, Kansas, Nebraska, MO, Iowa Arkansas, Oklahoma or anywhere else, know you are welcome..
Date: April 21, 2012
Time: 9 a.m. -3pm
Location: KUMC – complimentary light breakfast and lunch served
University of Kansas Cancer Center
2330 Shawnee Mission Parkway,
Westwood, KS 66205.
The meeting will be held in the Westwood Atrium Conference Room, directly above where we met the last time. If you park in the structure, try to park on the second floor toward the East. There is an entrance on the East side that is very close to the room.

This is a website for hotels around The University of Kansas Hospital: http://www.kumed.com/default.aspx?id=1807

Comments: Guest – Stephen J. Russell MD, PhD- Mayo/Rochester MN

http://mayoresearch.mayo.edu/mayo/research/staff/russell_sj.cfm
http://mayoresearch.mayo.edu/mayo/research/staff/publications-listed.cfm?personid=13198360
Notes on previous meetings: April 9, 2011 – Our guests were Dr. Robert Kyle of Mayo/Rochester MN and Dr. Suman Kambhampatie


APRIL 10, 2010 OUR Guest was– Dr. Shaji Kumar – Mayo/Rochester


August 8th meeting was a great meeting for bonding and working on strategy. With the help of the animation and Dr. Kyle’s slides we all received further knowledge of the disease and are determined to spread local awareness. Kellie and her family were great to let us use their conference room. We do hope to find a permanent home soon. Many are looking and others offered but we would like some hospital cooperation not to mention a doctor or two.



Amyloidosis Support Groups
AmyloidosisSupport.com
1-866-404-7539 TOLL FREE USA