"Some day this disease will be considered a treatable nuisance"
-- Dr. Vescio from Cedars Sinai

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Support Group Tips

Kansas City

This Support Group is still in formation stage. Details to follow as soon as possible.

If you would like to talk, please call the ASG at 866-404-7539 toll free in the USA (leave a message if no one is there and you will be called back). The non toll free number is 630-350-7539.

AMYLOIDOSIS SUPPORT GROUP MEETING
Contact Person: Muriel muriel@finkelsupply.com
Tel: 847-350-7540
866-404-7539 (Toll-Free)
Date: April 9, 2011
Time: 9 a.m. -3pm
Location: KUMC
Comments: Guests – Dr. Robert Kyle- Mayo/MN and Dr. Kambhampati KUMC
Notes on previous meetings: APRIL 10, 2010 OUR Guest was– Dr. Shaji Kumar – Mayo/Rochester


August 8th meeting was a great meeting for bonding and working on strategy. With the help of the animation and Dr. Kyle’s slides we all received further knowledge of the disease and are determined to spread local awareness. Kellie and her family were great to let us use their conference room. We do hope to find a permanent home soon. Many are looking and others offered but we would like some hospital cooperation not to mention a doctor or two.



Amyloidosis Support Groups
AmyloidosisSupport.com
1-866-404-7539 TOLL FREE USA