"Some day this disease will be considered a treatable nuisance"
-- Dr. Vescio from Cedars Sinai

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Georgia/Alabama/Mississippi Area

If you would like to talk, please call the ASG at 866-404-7539 toll free in the USA (leave a message if no one is there and you will be called back). The non toll free number is 630-350-7539.

AMYLOIDOSIS SUPPORT GROUP MEETING
Contact Person: Muriel muriel@finkelsupply.com or
Paula Schmitt pschmitt_98@yahoo.com
Tel: 847-350-7540
866-404-7539 (Toll-Free)
Date: July 12, 2008
Time: 9am to 3pm (approx – ending time.)
Location: Hope Lodge on the Emory Campus
Hope Lodge
1552 Shoup Court
Decatur, GA 30038
Phone: 404-327-9200

Click here: About the Hope Lodge
Click here: for a map

Many are staying at (rate under $60.00):
Quality Inn Northeast (GA141)
2960 N.E. Expressway I-85 @ Shallowford Rd. ex 93 , Atlanta, GA, US, 30341
Phone: (770) 451-5231 Fax: (678) 287-2150
Comments: Our next meeting on July 12, 2008 will feature Dr. Suzanne Hayman from Mayo Rochester Dr. Hayman's Bio: http://www.mayoclinic.org/hematology-rst/11254050.html and http://mayoresearch.mayo.edu/mayo/research/staff/hayman_sr.cfm and we hope to see all that are able to make it there.
Notes on previous meetings: Hello Everyone,

We had a wonderful meeting yesterday (2/8/08) in Atlanta with some visitors traveling in from as far away as Mississippi and Tennessee. We had patients (AL, possible familial, localized and not yet typed), caregivers, friends and family in attendance. Dr. Jonathan Kaufman, Assistant Professor of Hematology and Oncology, Emory University was gracious enough to stop in and field our many questions. We also welcomed our first familial amyloidosis family to the fold and we were able to offer some literature that may help them decide upon future genetic testing. Education and support are essential in helping those affected by the different types of Amyloidosis and I hope that we were able to supply that yesterday to our attendees. Our next meeting on July 12, 2008 will feature Dr. Shaji Kumar from Mayo Rochester and we hope to see all that are able to make it there.

Paula Schmitt
Amyloidosis Support Groups
http://www.mayoclinic.org/bio/12620637.html
http://mayoresearch.mayo.edu/mayo/research/staff/Kumar_SK.cfm


2/8/08 Guest was Dr. Jonathan L. Kaufman (credentials [Word Doc])


Dr. Rudi Hrncic of The Binding Site Rep explained Freelite Chains. Since he had worked at Mayo and with Dr. Solomon he sat in for the entire meeting and we mutually enjoyed the company.



Amyloidosis Support Groups
AmyloidosisSupport.com
1-866-404-7539 TOLL FREE USA