"Some day this disease will be considered a treatable nuisance"
-- Dr. Vescio from Cedars Sinai

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Support Group Tips

Florida - Jacksonville

If you would like to talk, please call the ASG at 866-404-7539 toll free in the USA (leave a message if no one is there and you will be called back). The non toll free number is 630-350-7539.

AMYLOIDOSIS SUPPORT GROUP MEETING
Contact Person: Muriel muriel@finkelsupply.com
Tel: 847-350-7540
866-404-7539 (Toll-Free)
Paula Schmitt Pschmitt_98@yahoo.com

Alternative contact is:
Kathy Wilson kalawil@cfl.rr.com

Date: November 6 , 2010
Time: 9am to 3pm (flexible)
Location: The Kinne Auditorium
Cannaday Building – Mayo Clinic 4500 San Pablo Road
Not the Walker Auditorium….(we used to be in the Davis Building)
Click Here for MAP
NOTE: The Kinne Auditorium will be in use, so we will be in one of the meeting rooms just to the left of the Kinne. You will simply take a left when you get to the doors of the auditorium and follow the hall around the corner. I will have signs posted directing the way to the new room. We will still be very close to the restrooms so no worry there.
Comments: GUESTS: TBA
Notes on previous meetings: GUESTS MARCH 6, 2010 - DR. JONATHAN KAUFMAN – EMORY AND DR. VIVEK ROY MAYO/JAX. WERE WONDERFUL


Our Guest in Oct. 09, Dr. Candido Rivera was informative, Supportive and educational.


Our Guests 1/31/09 were Dr. Vivek Roy and LLS rep Lynette Mills


May 17. 2008 - Our guest was Dr. Candido Rivera
http://www.mayoclinic.org/bio/10861505.html
http://mayoresearch.mayo.edu/mayo/research/staff/rivera_ce.cfm


1/12/08

The Jacksonville meeting went very well…Dr. Roy of Mayo/Jacksonville was informative and helpful and the Leukemia Lymphoma Rep (Lynette) made us aware of our $500.00 stipend and other entitlements from the LLS. They are on our website under patient and caregiver resources or you can go direct to www.lls.org. In Florida, even if you lost a love one you can collect on receipts if they were incurred during the fiscal year. Each state and district seems to have the ability to push the envelope in a different way.


7/28/07

Guest Dr. Vivek Roy and Dr. Rudi Hrncic from the Binding Site
Publications - Vivek Roy, M.D.
Research Bio:http://mayoresearch.mayo.edu/mayo/research/staff/roy_v.cfm
Postgrad on Line Article: http://postgradmed.com/issues/2006/06/093/


1/20/07 - Our guests were Dr. Vivek Roy and Ms. Deborah Slappey Pitts. They contributed to what was said was our best Florida meeting yet. We hope to be back in Jacksonville in the fall.
http://www.deborahslappeypitts.com/
Publications - Vivek Roy, M.D.
Research Bio: http://mayoresearch.mayo.edu/mayo/research/staff/roy_v.cfm
Postgrad on Line Article: http://postgradmed.com/issues/2006/06/093/



Amyloidosis Support Groups
AmyloidosisSupport.com
1-866-404-7539 TOLL FREE USA